Aspergers: paying attention

Paying attention at school can, at times, be trying for anyone.  It can be even harder for kids with ADD.  Yet, for Aspie kids, there can be an additional thing at play!

I am an Aspie, married to an Aspie, raising a couple of kids who are Aspies – not a professional in this field!  For a ‘boilerplate explanation’, please see my ‘Guide to my Aspie posts’ page.

One of the ‘things’ that define Aspies’ is the inability to innately read and comprehend body language.  However, many of us (especially ‘girl Aspies’, or ‘Aspiettes’, if you’d like) tend to realize we have this ‘blind spot’ and we try to compensate for it.

This often involves becoming more ‘observers’ than ‘doers’.  It means an Aspie trying to ‘decipher’ this is more likely to choose to be present for a lot of ‘social’ situations, but not actually actively participate.  Yet, the Aspie will keenly observe everything that happens in order to try to analyze the situation for behaviour patterns which would give us our personal ‘rosetta stone’ to non-verbal communication.

This process, by itself, is enough to alienate (‘creep out’) many ‘neurotypicals’ who are our peers – resulting in more ‘shunning’ and greater social isolation….which leads to more ‘Aspie frustration’!  After all, you are only trying to learn the patterns in non-verbal communication:  with your usual OCD intensity…  Yet, THAT is not the point of this post!  The point here is to point out how many Aspies’ attempts to pay attention are really misunderstood.

Let me use myself as an illustratory example:

I was raised in Central Europe – with a somewhat different schooling system.  50% of our mark was based on written tests – just as 100% of it is in North America now.  The other 50% was based on ‘oral/verbal testing’:  the person ‘being tested’ gets called up, stands in front of the class and the teacher, and is asked a question they must answer.

There IS quite a lot of merit to this form of testing.  For one, many of us (especially Aspies) are WAY better at demonstrating our knowledge verbally than in writing.  Also, if we have concerns about the question (often, test questions are so vague as to be meaningless), we can ask the teacher for clarification.

The other – and often unnoticed – benefit of this form of testing is that no two people will explain the same material in exactly the same manner and wording.  So, when a student is being tested, the whole class is being presented with a repeat lecture presenting the material, but in a slightly altered manner.  The teacher conducting the test will correct any incorrect statements by the student – and this is really key in helping other students correct their own misconceptions and learn!

Thus, testing students by calling a student to the front of the class and asking them to demonstrate their understanding of the material taught acts to both reinforce the lesson to the rest of the students, as well as correcting misconceptions and presenting alternate explanations of the material.  To me, this seems like a win-win-win situation…as it also helps people overcome fear of speaking in front of an audience.

Usually, there is several days of ‘study time’ between the time new material is presented to students and when their testing on it begins.

Sorry for the long explanation – but it is important to ‘set the stage’, if you will.

I was in grade 6 when I became most acutely aware of the whole ‘facial expression/body language’ method of conveying ‘colouring’ to one’s statements.  Predictably, I became completely fascinated by this weird and counterintuitive phenomenon!  When someone would speak, I would begin to obsessively ‘superfocus’ on their ‘non-verbal’ message, so that I could relate the two to each other later, when I ‘replayed’ the experience (in my memory) for analysis.

Except that there was one tiny-little problem:  when I would superfocus, I would – wanting to or not – block ALL other stimulations!  Unfortunatelly, this meant that if I focused on ‘non-verbal communication’, I could not help but block out all sounds…  Yes, it kind of defeated the purpose.

Well, this one day, I was in a history class.  The teacher (who had issues with my Aspieness – without understanding it was Aspieness) was actually presenting an extremely interesting lecture!  I was totally fascinated by it, and did not want to miss a single word!  I was determined to pay full attention and not miss a single word, no matter what!

Yet, I knew that if I started looking at the teacher, I would ‘skip’ into the ‘superfocus’ mode, where I would ‘record’ every bit of her body language and facial expression nuance – but I would loose everything she said!  And I was too interested in the lesson to want to miss what she was saying!!!

So, I did EVERYTHING I COULD to pay attention to what my teacher was saying!

To keep myself from ‘getting stuck watching my teacher’, I forced myself to pointedly stare out of the window.  When that started failing, I looked at the ground under my desk.  Then I stretched my arms out on my desk and tried to burry my head in them – as aggressively as I could – so that I could prevent any visual stimulation which would distract me from listening to my teacher!  However, the temperature in the classroom was pretty cold, so even this was difficult.  So, I started hitting my head on my desk – just a little bit – to force myseld not to look at my teacher – just enough to keep focus so that I could pay attention to what she was saying.

I got told off for disturbing the class!

You must understand, back then and there, NOBODY knew (or was allowed to know) about Aspergers.  Even migranes – which I suffered terribly from since early childhood – were not a ‘legal’ diagnosis….  My mom, who got me to see a doctor at the hospital (not an easy task in a socialist country where the medicare is ‘free’ – she had to call in a bunch of ‘favours’ and give out a number of non-monetary ‘gifts’ to get me to be seen by a specialist) was told that my symptoms ‘would be’ a textbook example of migranes, except that officially (read ‘political correctness dictating medical diagnosis’), migranes were ‘something upper-class, bored ladies pretended to get to make themselves more interesting’ – and as such, ‘migrane’ was not a permissible diagnosis in a progressive, socialist country that did not have ‘bored rich ladies’…  It was CERTAINLY not an acceptable diagnosis for a little school-girl! The doctors would loose their jobs…

IF Aspergers had even been part of either the educator or medical training, it would still have been stigmatized, along the lines of ‘migranes’….but, it most definitely was NOT taught or mentioned at all!

Predictably, in the classroom, my many attempts to pay attention were greatly misunderstood!

I got into trouble for NOT paying attention!

Frankly, there was nothing I could do to pay attention more!  Yet, my teacher seemed (as usual) extremely angered by  my behaviour… 

And she did something unusual and unexpected!  (I knew it was unusual, because I had not witnessed this before.  I realized it was unexpected by analyzing the surprised and shocked noises and (YES! I had learned this much!) facial expressions of my classmates:  my teacher called me up to the front of the class to test me on the material she had just finished presenting!!!

Frankly, I think I shocked her.

I could repeat everything she said, every date she presented, understood and could explain every ‘reasoning’ she had presented to us in her lecture!  As she gave me an ‘A’, she said she was shocked because she ‘saw’ I was ‘totally not paying attention’ during the whole class, and this was meant to ‘discipline me’!  Looking back, I think she thought me defiant when I truthfully said I had NEVER tried to pay attention as hard as I had that day!

So, what is the point of this post?

When Aspies look like they are doing everything NOT to pay attention – they might truly be escaping into their own world of interests….OR, they might be doing their best to truly and honestly listen to what the teacher is saying!!!  Just because their behaviour does not conform to that of other children who are paying attention does NOT mean that Aspies are not paying attention, nor does it mean that they are not TRYING to pay attention!

Just as Aspies ‘suck’ at ‘reading’ body language, there are times when we just as much ‘suck’ at PRESENTING body language!  We are VERY BAD at emulating the ‘cultural norm’ external body language ourselves (especially when we are young and before we have learned to emulate/fake it).

Yet, just as WE are bad at ‘reading’ the body language of ‘nerotyoicals’, the ‘neurotypicals’ are eaqually as bad at reading OUR body language!

This may lead to ‘Aspergers’ so called ‘specialists’ of the past (hopefully not the present) to put inappropriate emotive labels on Aspies:  claiming we are lacking in empathy, social belonging, inability to sympathize, stunted emotions and so on.  Nothing could be further from the truth!

These false charges and many misunderstandings only hurt young Aspies and further undermine our regard for our abities, our self-confidence.  It is one of the many ‘drops of poison’ which causes many Aspies to shut themselves away from ‘the world’ and limit ourselves to our ‘internal worlds’, where such hurtful undermining of us is not a daily reminder of our inadequacies.

So, the next time you see a person whose body language you think inappropriate, please, consider the possibility that you are simply unable to understand THIS person’s non-verbal communications – just as much as that person is unable to understand yours.  Respecting this difference – and learning from it – is constructive.  Rejecting or ridiculing such a person – well, this is not so nice…and can ruin a person’s ability to EVER truly believe in themselves again.

Aspie sense of ‘fair play’: kids and ‘rules of the game’

One of the characteristics that many people notice about us Aspies is that we tend to have an overdeveloped sense of ‘fair play’.  This is the first look at how this may manifest itself.

Often – especially during childhood – this takes the shape of very rigid adherence to ‘rules’.  I remember the genuine tears of my kids as other children would play a game ‘wrong’ or ‘with the wrong rules’.  I also remember the arguments of ‘you can’t change that – it’s a rule of …. ‘!

This can lead to difficulties in many social settings.  Aspie kids can be very good at board games or card games, so this is an excellent way to have them interact with other kids.  However, it is important to make sure that everyone agrees to the rules of the game exactly the way the Aspie had learned it…..or the Aspie ‘inflexibility’ and ‘obstinance’ will start a temper tantrum will end the game and result in further ostracism of the Asperger child.

Of course, I do not think of it as ‘inflexibility’ or ‘obstinance’ at all.  Instead, I see it as an issue of ‘right’ and ‘wrong’.  But then again, I am an Aspie…  Whatever the cause, however, the problem – this barrier to social interaction – is still there.

So, how to handle it?

Aspie kids can handle ‘different rules’ in variations of games IF things are presented in the correct perspective.  The key is recognizing WHY they are so opposed to ‘changing rules’.

Imagine yourself living in among a group of people whose language you did not understand.  Then, you begin to discern some ‘patterns’ in behaviour.  If you would indulge me in a personal story to help draw a parallel:

Two friends and I went down to visit another friend in a Spanish-speaking country.  None of the three of us spoke Spanish, but we were staying with our bilingual friend and her family, so we were not worried.  Except…through series of circumstances, our friend had to go to a different town and we were left with her non-English speaking family. 

Much to their credit, they took awesome care of us.  They took us places, showed us things, treated us extremely well.  Except that when they would come and tell us we are going somewhere in the car, we had NO idea whether we were going out for lunch to a fancy restaurant, to a tourist attraction, to a beach, or – as happened once – for a 3-day stay at a beach villa.  We had no idea how to dress, what to bring with us, when we’d be back.

After a bit, I began to notice some patterns – and these were my lifeline!  It set up some ‘rudimentary rules’ we could go by.  We clung to these – when you don’t know what is happening all the time, you feel very vulnerable!

Similarly, an Aspie child has a lot of difficulty understanding social communication.  We take it for granted that people can read and understand our body language and facial expressions (even tone of voice) – and so we do not comprehend just how much we do not actually say when we communicate.  We presume that much is understood from how we say something, not just the words we use to say it.

But Aspies cannot do this.  It is difficult to explain just how difficult it is to comprehend ‘communication’ – one even often questions one’s ability to understand the spoken language.  After all, ‘bad’ means ‘bad’ – but here it means ‘good’….  Without the ability to add body language, facial expressions and tone of voice to the word itself, the ‘rules’ of social interaction and even language can become incomprehensible.  Add to this that for very long time, many Aspie kids do not even know that there is such a thing as ‘body language’ which others understand and they have to learn to look for!

It is like pointing to a picture while talking about an apple – and expecting a blind person to know we are talking about the red apple in the picture.  The blind person does not even know there is a picture…..and does not understand how come everyone else knows the apple in question is red! 

Perhaps this is only one of the ‘contributing factors’, but it is one that is easy to explain as to why Aspies cling to rules they actually know they understand!

And that is they key:  understanding.

Activities like board and card games have very explicitly stated rules – rules that everyone understands before the game begins.  Aspies and therefore not handicapped and can participate on an equal footing with everyone else.  That means a lot.

So, starting to change the rules – that can bring up the whole overwhelming frustration right up!  It’s as if the Aspie is being robbed of the one glimmer of understanding of how things are supposed to be.  No wonder it upsets us to no end.

So, what is the solution?

When you teach an Aspie a game and explain the rules, make sure you explain these are the rules for THIS version of THAT game.  Explain there are MANY versions – we play version …. (name it something the Aspie child can relate to).  Then, you can say there can be versions of the game which have ALMOST identical rules, with just little variations – and that if they go to play the other version, everyone will make sure to teach them the NEW GAME!  Because that IS what it is:  each ‘variation’ is really a different game, with different rules:  they are called the same thing because they are a ‘family of games’ that has ‘similar rules’.  (You can even relate it to family name and first name – different people in the same family…)

This releases the tension of ‘changed rules’!

Instead, you are setting up the expectation of different rules because one is learning a ‘NEW’ (though similar/related) game.  This is a completely different situation – and usually quite acceptable.  Yes, there will be the inherent insecurity by the Aspie, wondering if he/she understands the rules of the new game sufficiently well to play with the others (and the Aspie may select to watch for several turns, precisely to make sure of the rules), but it is not turning the Aspie’s world upside down by negating their rare and precious understanding of at least some rules.

It is important to set this expectation up before encountering the situation, because once that meltdown has started, it is difficult to stop it.  Release of ‘pent up frustration’ is difficult to get back under control, especially in a young child.  So, making sure that the situation is properly framed before it occurs is very helpful.

No, this is not a magic wand that will make it 100% perfect every time – the Aspie may wish to get everyone to play by the rules they are familiar with, because they are more secure when dealing with the understood rules.  But when parents, educators and caregivers understand this, it may affect the way they approach the resolution, so it is more successful. 

My personal experience is that this approach usually results in a positive interaction with other kids and builds an Aspie child’s confidence in their ability to learn the rules of interacting with others.  And as they become more confident in their ability to play successfully with other children, more social skills can be built – and this is a good step towards a successful and happy Aspie child.

Island of Merzy – part 2

A few days ago, I posted part 1 of this story, in order to demonstrate that we, Aspies, do indeed have a most excellent sense of humour.  If you liked it (or the comment by EBD – which, by the way, is brilliant and which I intend to use as ‘my witty anecdote’ during this weekend’s Thanksgiving dinner – you might enjoy this one.

When the explorer landed on the island of Merzy, he was amazed by so many
things…one of them was just how healthy and youthfull looking all the natives were.
Once he was accepted, he learned the secret: they had a special tea that they
brewed in a particular way, according to ancient rituals….

What was neat about it was that the tea was made from some special buds that grew
very high up in these trees that grew only on the island of Merzy. There was no way
humans could collect them from the fragile tips of branches…. The Merzians had a unique solution: trained Koalas!!!

The Koalas collected the buds – we don’t want to know the detais – then return to the villabe.  There they were (eventually) collected, and processed in a secret way – then, they were brewed into a tea.

When the explorer had to leave the island of Merzy, the chief’s daughter was very sad (the two had fallen in love). He promised to return to her as soon as his duties allowed – and she gave him (secretly) a sack of the Koala tea for his journey.

When our explorer returned to his Queen (who had funded the expedition), he wanted to repay her in the best way possible. Since his love had taught him to brew the Koala tea, he prepared it exactly right, to serve it to the queen.

During his audinece, a servant was bringing the tea in – and noticed there ‘bits’ floating in it – and, mindful of court etiquette, the servant strained the chunks out, returened the tea to the pot, and brougt it in.

The explorer served the tea to the queen and her court: they all drank of it – and mmediatelly died!

Why, do you ask?

Because the Koala Tea of Merzy is NOT strained!

Island of Merzy – part 1

While I was reading up on famous Aspies, I came across an assertion that Albert Einstein could NOT have been an Aspie, because he had a sense of humour!!!

This came from someone who is apparently considered to be an ‘expert’ on Asperger’s syndrome….  How sad.  It sounds like one of those ‘experts’ who only considers a very small percentage of Aspies and – proverbially – sweeps the rest of us under the rug.

Just for the record, I would like to repeat:  Aspies have a sense of humour!!!

If you don’t believe me, read xkcd (apparently, they picked the name so it could not be pronounced as a single word…but I was only told that after I HAD been pronouncing it that way…my native tongue can have sentences that are gramatically correct and make sense – yet contain no vowels…and YES, I DO love ‘tongue-twisters’!)

Alternately, let me tell you a story about the island of Merzy….

Once, long ago, when the Earth was smaller than it is today – well, at least the ‘KNOWN’ world (i.e. known to the Europeans who KNEW they were at the centre of the Universe), there was a small, unchartered island somewhere in the tropical band about the world. This island was called Merzy.

It was inhabitted by a wonderful peoples. One day, a European explorer happened upon that island and immediatelly fell in love with it, the people, their culture – or, perhaps, just the
Chieftains’ daughter.

Either way, he feared that as more Europeans would come, they would consider the natives to be ‘savages’, because they did not display the ‘European trappings of power’. The best way to protect them, her reasoned, was to -within the frame of their culture – also teach them how to emulate some of the things that would force the Europeans (who were bound to follow there, now that the paradise-like island had been discovered) to treat the islanders with respect – and not like the other indigenous cultures they had encountered while ‘discovering’ the globe.

It would not be as difficult as all that, our explorer thought…

First, the Chieftain had to be referred to as a ‘King’. That is what all the Europeans called their leaders.

Second, he had to appear ‘kingly’. That meant a proper, golden throne, and that sceptery thingy and the apple-gold-bally thingy. (I love technical terms!)

Third, they had to do something about the architecture….since all the buildings on the island were really just straw huts, the Europeans might not take them seriously, after all.  So, they had to ‘Europeanize’ the buildings – you know, they had to put up a fancy facade…

Getting everyone to call his beloved’s father ‘King’ was easy. At least, he taught them that the word ‘Chieftain’ translates into multiple European languages as ‘king’ – same thing, really.

Then, they set about building a huge, multi-story straw hut.  Yes, a ‘proper’ building would have been better, but, well, you had bamboo and much straw – and little else for building materials, so the plans had to be adjusted a bit from ‘palace’ to ‘big, two-story hut’.  (Please, note that I did NOT say ‘hutlace’.)

But – they did it! It was magnificent! It was very large, so most of the natives from the tribe could gather inside for celebrations. It had two stories around the edges, and the middle was open to the tall ceiling.

And, in the place of honour – the centre of the hut/palace, they placed the masterpiece – a magnificent, golden throne! Yes, it was not easy to make the throne, but it really was magnificent:  inlaid with mother-of-pearl and all kinds of precious thingies.  A real throne!

The King even got a crown, sceptre and the roundy-bally thingy, which matched the style and look of the throne: golden with pearls all over.

Now, they would be ready for any Europeans to come!

The explorer, sadly, had to return home. After all, even though he wanted to stay, he owed a debt of honour to the Queen (it is ALWAYS queens who fund the most excellent explorers – I think it has to do with longing and the mystique of the unknown) to come back and give his report.  With him, he brought many specialities from the island… and he promised that as soon as possible, he would seek permission from his Queen to return to the island and seek the hand of the Merzian princess (chifetain’s daughter) in marriage.

Time passed, but nobody came.

More time passed, and nobody came.

When it became clear that something had gone wrong with the explorer, and he was not coming back – and nor were any other Europeans (the island was rather well sheltered and hidden from major shipping routes), the islanders slowly put away the’European trappings of power’ – except that they did like the big hut! It was an AWESOME party place!

But that big throne was always getting in the way….so, to keep it a bit out of way, the islanders decided to shove it up to the second story of the hut – the whole second floor had, really, become one big storage space.

One day, they had a most excellent party!

Lots of dancing, tea-drinking, singing, and coconut-clapping…..and then, suddenly, with horrid, tortured creaking and cracking, the floor under that heavy throne gave out!!!

The whole hut started collapsing, caught on fire from the party torches, and EVERYBODY DIED!!!!!

And WHAT, do you ask, is the moral of this story???

PEOPLE WHO LIVE IN GRASS HOUSES SHOULD NOT STOW THRONES!!!!!!!

… and they say us Aspies have no sense of humour!!!!  We can make things funny AND follow the rules of how humour works!!!

A new ‘page’ is added

While I may be interested in all kinds of things, the most regular hits my blog gets is from people looking for advice and help in dealing with Aspergers’ Syndrome.

I have made no secret of it:  I am an Aspie!  My hubby is an Aspie!  And, predictably enough, our kids are Aspies!!!  It is therefore not too surprising that I have tried to share some of the more successful methods used by ‘us’ to successfully integrate into the social mainstream.  Not only am I proud of our successes, I am also motivated to help others who are experiencing similar things – as well as helping ‘the society at large’ learn to understand ‘us Aspies’.  Though I may not be one of the ‘exceptional ones’, many of the humans who DID change the course of human societies WERE Aspies…so the need for understanding runs both ways.

Therefore, I have written a bit about Aspergers and Aspies.  After a bit, even I was getting confused between what posts I had finished and published, and which ones I started and got distracted from….there are just so many distractions around!!!   Have I shown you the……

You get the picture.

So, I have made up a nifty page where I have listed my ‘Aspergers’ posts – with a little summary for each one.  It is not much, but I do hope it will serve as a useful tool for people who are seeking help and understanding.  I do hope to edit it often to include all future post on this topic, too (but, no promises – I am ADD, too….)

Anyhow, I do hope this page will prove useful.

Aspergers: not just ‘extreme male brain’ syndrome

If you have done some reading up on Aspergers, you have likely come across the description of it as ‘an extreme male brain’ syndrome.  It is a ‘quick and easy’, one-phrase explanation that ‘makes sense’ to some people.  I’ve often wondered if this theory is based more on the ‘men are bad at social skills, women are bad at math’ stereotype than on anything actually particular to Aspergers itself. 

It seems I am not alone in being a little uncomfortable describing aspergers as ‘extreme male brain’…to the contrary, many suggest that this description of Aspergers arose because it was only studied in males.  And only in a particular type of males, to boot!

Here is an extremely good rebuttal of that idea, written by Felinophile, a young woman who also happens to be an Aspie:

 

This theory that people with Aspergers have an extreme male brain is sexually-discriminatory, as it is based on studies of Aspergers males and people who fit the Asperger-male sterotype. It completely ignores the way Aspergers manifests in women, which is part of the reason it is seen as controversial.

Like a lot of Aspergers girls, though, I don’t fit the Asperger-male stereotype; while I have difficulty interpreting and expressing body language and facial expressions I have learnt over time to mimic others behaviour and responses, and to form a rough checklist for interpreting other people’s behaviour. While I have good spatial abilities, and do better than non-Aspergers girls in some areas of maths, I never had a gift for mathematics; instead, it was for language, as it is for some other Asperger girls

 

Read the rest here.

Aspergers and memory – part 2: rote memory vs. reasoning

In yesterday’s post, I explained that while I have not been writing about Aspergers, I have been reading up on it.  While I am interested in this topic (being an Aspie myself – and living with other Aspies), I am not an expert in this field in any way whatsoever.  What I write are personal observations and should not be taken as anything other than that.

So, in Aspergers and memory – part 1: ‘sequencing’, I described that some ‘memory’ studies found that Aspies had difficulty recalling the order in which words were placed on a list they were given to read/memorize, which lead me to wonder if the frequent occurrence of dyslexia and ‘hearing dyslexia’ (APD) might be related to some memory or brain proccessing bit that messes up ‘sequencing’. 

Other studies I looked at would also have a list of words (10, 20, or more) to read/memorize in a short period of time, then the person would be presented with a whole page of words. The goal was to identify the words from the original list – Aspie results were compared to those of their ‘neurotypical’ peers.  The Aspies also did not do as well on this test as others did.  Yet, there was something that more than one researcher found quite intriguing:  for every ‘list’ word the Aspie missed, he or she was very likely to identify another word with similar meaning!  As in, they replaced some ‘list’ words with their synonyms…

Now, that opens a whole new way of looking at things!

I even read one very interesting study (only one, but I am looking for more) which concluded that Aspies of similar IQ as their peers were much, much worse at ‘rote memory’, but much, much better than their peers at remembering things they had reasoned out. 

This study found that ‘rote learning’ was absolute torture for Aspies, and they, frankly, sucked at it.  Not that they were incapable of it – they could improve it with practice.  Yet, it was not one of those things that came easily to Aspies.   Most Aspies had better recall of things which were ‘explained’ to them, rather than simply memorized.  They slightly outscored their peers, while other Aspies were just as dismal at this as they were at rote learning.  Where all Aspies excelled far above their peers was in remembering things they had reasoned out for themselves. 

Consider the implications of this:  some Aspies will be dismal in ‘rote learning’ or even ‘comprehensive learning’ (not proper term, I mean things they were taught through ‘comprehension’), but they are extremely good at remembering things they had figured out on their own!

And I must admit, this makes sooooo much sense to me!!!

The things I remember best from school are the ones where the teacher would introduce the topic, set up what he was going to use to explain it, and – before he would even say the first sentence – I would ‘see’ the pattern and understand exactly what he was about to explain.  As in, if I reasoned it out by myself – I still remember it without any ‘time degradation’, while if I understood the teacher’s explanation, the whole things gets ‘fuzzy’ with time and I have to strain to remember it, even if at one time I understood it and knew it perfectly.

Please, consider what is seen as one ‘typical’ Aspie trait:  they acquire ‘ecyclopedic’ knowledge about some obscure subject which they become absorbed in.  Could this be related?  Perhaps not ‘an explanation’, but could this be another manifestation of the same, or very related, phenomena?  After all, their ‘encyclopedic knowledge’ is to a large degree ‘self-taught’….

What are the implications of this?

First, I think it means we have to approach teaching Aspie kids very differently.  Take spelling, for example.  Instead of teaching Aspie kids simply the sound of the letters, what letters make up the word, and so on….what if we started teaching them from a broader linguistic background?  It is what I did with my kids – and it really worked…but I did it because to me, it seemed ‘the only’ way to approach it….  It would go something like this:

“See this word?  Well, look here – this is the Latin word for …”

“Hey, they have a bunch of similar letters in them!”

“Why do you think that is?”

“Ah, this bit of the meaning is the same!  They just took a Latin word bit and stuck it to …!”

Spelling that word would never be a problem in the future!  (There would still remain the often difficult task to actually motivate and Aspie kid to look at the words in the first place…but that is a whole different topic!)

Mind you, I took this approach to teaching grammar to my older son, too.  Our school system is operating on the ‘whole language’ method, where kids are expected to ‘absorb’ the language from their surroundings.  This simply is torture for Aspies, who like very specific rules they can apply – especially with English, where the linguistic ‘rules’ of a sentence are extremely well masked!

So, I turned to Latin – no we did not memorize the vocabulary, but the words in Latin are ‘flexed’ very specifically based on the role they play in a sentence.  It is therefore easy to see the patterns of how sentences are constructed.  Just showing the rules to my older son and letting him figure out for himself how to then build a sentence with latin words ‘flexed’ properly had an incredibly positive impact on his ability to write in English. 

Perhaps this is only one example, and perhaps this may not work with other Aspies, because there are soooo many individual differences between us.  Yet, I would be curious to know if others’ experiences and observations are similar to mine…so, please, let me know!

Aspergers and memory – part 1: ‘sequencing’

During the past few months, I have not been writing about Aspergers because I have been doing a bit of reading up about it – there is so much ‘food for thought’ in the feedback to my earlier posts on Aspergers (thank you all) that I just had to check some things out.  Of course, not all my curiosity has been satisfied – but I think that I have learned things that have helped me make a little bit of sense of some ‘Aspie patterns’.

The one thing I have read about the most is memory.  And if you Google it, there actually are quite a few studies about Aspergers and Memory out there – so I, an Aspie (and definitely NOT an expert) am not the only one to suspect that one of the ways Aspies differ is in the way our memory works.

The conclusions of the studies were unsurprising:  Aspie memory works slightly differently. 

Yes, there were IQ tests as part of many of these studies to ensure that Aspies and ‘others’ of ‘similar’ intelligence were compared.  Some looked at adults, others at kids or teens.  (Many studies I read looked at Aspies vs. Autistics, but  that is a different story.)  (Frank admission:  while I read some studies completely, others I only read the ‘hypothesis’, the ‘methodology’ and ‘conclusions’ sections.  This was not from slacking or taking shortcuts, but because I really wanted to read many different studies, from different areas, looking at different age groups, run with different goals, so as to get a glimpse of the ‘big picture’ and the patterns within it. )

Here is where I must warn you:  the scientific studies I read made observations and conclusions.  Various studies, various observations and conclusions.  What follows here is my interpretation of the conclusions of several of these studies.  It is NOT any opinion (as far as I know) of a professional in this field.  These are my higly subjective ideas, so, please, treat them as nothing more than such.

Several of the studies had (with variations) presented a list of words which the people had a chance to read several times (or, variously, study for a given time period), and then had to repeat in the same (or reverse) order.  The Aspies usually remembered fewer of the words from the list than their peers.  Now, here is the intereseting bit:  they were absolutely terrible at putting the words into the proper order!

This immediately made me think of the very high incidence of dyslexia and ‘hearing dyslexia’ (Auditory Processing Disorder (APD)) in Aspies.  I may have it backwards, but it sounds to me like this difficulty in ‘putting things into order’ is a pattern:  sounds, letters and words cannot be ‘remembered’ in the ‘right order’….  But with APD, the science tells us it is a problem in ‘perception’. 

So, I reasoned, perhaps this is a general ‘processing’ difference of the brain itself.  Perhaps this is not a simple ‘memory’ function.  Perhaps this is telling us something about the overall processing that the brain does – and how an Aspie brain does it differently.

Or it could be a memory function – but the memory fails very, very early on. 

Let’s consider hearing:  our ears sense vibrations, which are translated into a neural impulse.  This impulse travels into the bit of the brain which makes sense of the sound, and sends the ‘translated’ information to other bits of the brain, as required.  For example, if it determines a sound to be ‘words’, it might send the message to the ‘language’ section of the brain.  But, is all of this instantaneous?

In many people it is.  But I don’t think this is in any way universal.  For example, I know several people who can hear me say something and completely fail to react to it.  When I ask them what I said, they look thoughtful and then repeat word for word what I had said.  Yet, until they were requested to repeat the words, they were completely unaware that they had even heard them.

It’s as if the phrase were held in some sort of a ‘buffer’, completely preserved and perfectly remembered, but not deciphered by the brain.  Only when this ‘buffer’ was consciously accessed did the brain actually get access to the information in it.  This suggests to me that in-between the different ‘processing’ stages, the brain must hold the information in some sort of a memory slot. 

And if the Aspie memory has a predisposition to ‘jumbling up’ the order of sounds (or pictures) it is holding on to, it could explain all of these.  Jumbled up sounds, pictures, order of words.  All of it.

Or, it could be something completely different.  Yet, I have received so many messages from people, asking for more of my observations about Aspergers – as well as offering me their perspectives about what I wrote – that I thought that even though I really am not sure what it all means, putting this observation ‘out there’ might be a good idea.

This way, I hope, many of you will share your own experiences in this and together, perhaps, we can make more sense of this!

‘Motivating Asperger kids’ – a tutor’s story

A HUGE obstacle in teaching Aspie kids is engaging their interest and motivating them.  Unless motivated, these kids will simply not retain learning.  And since these kids tend to be have problems reading ‘social cues’, usual motivation techniques, which involve some forms of ‘social pressure’ will fail to motivate them.

This can lead to frustration on all sides!  Teachers/tutors, parents and the kids themselves!

Following is an excellent account Lorraine has sent in, about her experiences of tutering two Aspie boys and SUCCEEDING by MOTIVATING them.  Please note:  the story is as Lorraine had written it, with only minor editing.  The emphassis, however, is my addition.

It was very interesting to read the mail posted on his site.  I am tutoring spelling to a 10 and an 11 year old boy with Aspergers.
Until I met these boys at the beinning of 2007, I had never heard of the condition.  I am amazed at how intelligent these boys are compared to other ‘normal’ children. They love facts and tell me things that outstand me, that a young boy of his age could know those things.

The reason these boys are coming to me is that they have problems with reading and writing. They were at the very bottom of their classes at first and have now come to second top, and fourth from the top.
One teacher commented to the parent, “How can she teach him 10 words in one hour and I can’t teach him one word in a week.”

I hope my crazy methods will work for others as well, and that is why I have decided to post here.  Who knows, maybe the ideas might be helpful to someone else!

We don’t do spelling when they are here in the way that you would expect. We invent things we are going to do the week before, so that they know what we are doing before they come here.  This seems to be pretty important, planning ahead.

The boys come here on different days to each other.

With one boy, we made a coffee table that his mother is so proud of she nearly cried. Another time he did a lovely painting in oils using my good oil paints and a big canvas. On this he painted a dragon, it was beautiful. Next he got to use real tools and made a four piece candle holder complete with candles in little dishes. The list goes on.

Back to the table. We went to the local op-shop and bought a “daggy coffee table” for three dollars. Then we bought a pile of plates, about 20, in his favourite colours. He chose the plates himself, not me. The plan was to use tools and sander to refresh the table, and break the plates to use as tiles to do a mosiac on top.

Each step was pre-planned and fun motivation to learn.

Each step was pre-planned and fun motivation to learn.

We went back to my place and for every word he spelled correctly three times, he got to go outside, place a plate in the bag and break it with a hammer. It wasn’t too long before he had enough smashed china to make the top of the table. He spelt a lot of words, had a lot of fun and laughter, and overall enjoyed himself. That part took two visits each for one hour.

The following week, he got to work on the wood with with my small electric sander. Same thing, spell the word and get to do a section of the table. That took a couple of weeks. The exciting thing for him then was to be able to do a drawing on the table.

The folowing week, he worked out his design and the pieces he would put in the places he chose. The week after that he glued his pieces where he thought they would belong.  However that was a slow process and it took two weeks also.

The following week, he got to grout his tiles. That took a long time and we had arranged to ring his Mum when it was finished. He had done a beautiful job on it. This also had a dragon. He had chosen his own colours and I was a bit dissapointed when he chose the colours he did, but I didn’t say so, and it was just as well I didn’t because his table is wonderful.

The project took a whole term, he learnt all his words, wrote several sentences each day, gained confidence in the class room. He became a bit more friendly with his teacher and so the tantrums and frustration have lessened.

Other things we did were collecting a bucket full of gumnuts, putting them through a polisher and used the colourful little things to make a fish statue, he did a beautiful job.

What comes through to me is that if there is a reason or a reward that appeals, he ceases to find study to be so painful. It works well.

I have only two students with aspergers, but I have found them both to be very interested in making things that they can use, being very creative as they do, and if not interferred with will do a very good job.

Motivating kids to learn - a truly creative method!

Motivating kids to learn - a truly creative method!

The important thing is to plan ahead so that when they get here, they know what to expect. If I slip up on that aspect of it they don’t seem to emit the same enthusiasm. They seem to feel let down and I get guilty.

Of course as everyone will know, thay are not too keen on instruction, so drawing and planning ahead eliminates the need for further instruction.

Well I hope you don’t mind my sticking my beak in here, but I am so enthusiastic about the results and at how pleased the mothers and fathers are, I just wanted to share this.

Thank you.

And, thank you, Lorraine, for sharing this wonderful story and your insights!

Aspergers and writing – sentences

Writing a sentence seems like a simple thing – just figure out who is doing what, and write it!  Right.  Except it is not that simple for an Aspie

This seems incomprehensible to many teachers, parents, and any ‘outside observers’.  How come an Aspie is fully capable of presenting a coherent, detailed explanation of something without any preparation, but when asked to write a sentence or two on that same topic, they are unable to produce one?  How come that when asked a question, an Aspie student can speak for 15 minutes, giving exhaustive, accurate answer, but will only put down a single word as a response to the same question on a written test?

It does not seem credible – to the teachers or parents – that this could be possible.  ‘Just write down what you said!’ tends to be the response/command/advice, but it just does not work like that.  I do not know how or why, but I have seen it and experienced it.  Needless to say, this only leads to very high levels of frustration among both sides…

Many professionals in this field are studying this, and doubtlessly, there are many excellent theories about why or how this occurs.  I do not attempt to address that here – I just hope to look at the mechanics of how this can be overcome… at least, a tiny little bit!

First, the way language is taught is terribly important.  It can mean the difference between practical illiteracy (at least, in the ‘output’ phase) on the one hand, and ‘functionality’ on the other.  How can this be so?

Aspies tend to like to follow rules.  Perhaps not everyone’s rules, perhaps they have a lot of difficulty decoding social rules, but – once a rule is understood and accepted, Aspies tend to derive comfort from adhering to them.  This is true for language.

It is unfortunate that the current ‘model’ for teaching English (as a first language) in much of North America is the ‘whole language’ approach:  this is the hairebrained idea that children will simply ‘absorb’ the rules of English when they are ‘exposed’ to them.  Perhaps this may work for a small minority of kids.  It certainly makes the teaching less laborious, because the teacher does not have to actually teach grammar, correct grammatical errors in written work (we are looking for substance, not grammar…).  And, much more often than I would have liked, I have come across teachers who are not even able to follow simple rules of grammar themselves!

This is a major problem for Aspies:  the rules are difficult to ‘absorb’ – especially when the teacher does not use proper grammar….  Constructing a proper sentence then becomes quite bewildering.  Yet, many Aspies can master written language quite well, so there must be something else going on here.

Perhaps there is a different part of the brain that controls verbal and written expression.  Or, perhaps many Aspies consider things that are ‘written’ to be ‘permanent’ – and therefore there is a much higher level of perfection that is required.  I have asked many adult Aspies who have tremendous difficulties writing things, and there seem to be striking similarities among most of them.

First, the idea.  That is the easy part.  In other words, the Aspie knows what he (the friends I questioned were all men) wants to write.  The problem comes in the how to write it:  they will put a word down, wonder if it is the most accurate one – and start ‘googling’ it. Wikipedia probably has some pretty good definitons of this – you should check it…. 

The problem with Wikipedia

OK, refocus.  Now you have the correct word.  So, how do you fit it into the sentence correctly?  Is that the right grammar?  Perhaps you should ‘google’ that….

 

OK, refocus.  You now have a noun and a verb, most likely in the proper grammatical structure.  But it is nowhere near sufficient to capture the meaning…  Perhaps it is time for lunch.

And so it goes.  Not very productive, but, eventually, some semblance of a sentence will be produced.

So, how can one help a child learn to overcome this?

My personal exerience gave me some insight.  I was lucky enough to be able to reproduce patterns – sound patterns and picture patterns.  This helped me get selected for a language school when I was 8 years old… and while I was struggling to write basic sentences in my native tonngue, miraculously, I did not experience the same problem in the new languages.

Perhaps advice from a teacher helped: 

‘Do not write what you want to say, write what you are able to say!’

With a limited vocabulary of less than 50 words, and only a rudimentary rules of how to construct a sentence according to the new language’s rules, the prospect of ‘writing a sentence’ became more managable!  With only a limited number of permutations possible, selecting the best possible combination of them which most effectively gets the point across became easy!

When my older son got to a point in his schooling where he was expected to construct more than just simple sentences, he started having a problem.  Trying to help him, I realized that he only had a very basic (and somewhat flawed) idea of how English grammar works….

Solution?

Basic textbook of Latin!

The reasons for selecting Latin were many:  from loan words down.  But the most important reason was that the Latin grammar was very explicitly spelled out – and that the endings of the words would change, depending on what role in the sentence that word played.  This is very key – it reinforces the rules of grammar, and helps figure out how to use them to construct a sentence.

My goal was not to teach my son Latin.  As a matter of fact, we spent no effort on memorizing vocabulary – we only focused on learning the rules for ‘flexing’ the words:  what does a particular ending mean – and what it tells us about the role this word plays in the sentence.  This skill was then easy to transpose into English sentence composition.

Yes – sentence composition.  Because that is how it has to be approached – this word is the subject.  This word describes the subject.  This word is the verb.  This word describes the verb….  and so on.

For younger kids, it might help to use tools:  on small, rectangular pieces of card paper, print a limited number of words related to the topic the child needs to write a sentence about.  Depending on the kid, start with 20-30.  Separate them according to their role in the sentence – it migh be very helpful to colour code them.  Nouns in one colour, verbs on another, pronouns, adverbs…so on.  Or, just separate them into piles. 

Then, when the child needs to write a sentence, let her/him pick out the right words and ‘build’ the sentence out of the ‘card words’.  Since only a very limited number of words are available, the child must be told the task is not to ‘answer the question’ – because that might seem impossible!  Explain to the child that the goal is to ‘build the best possible answer out of these words.  It will not be perfect – and it is not expected to be! Make it a game to try to create the best ‘best fit’ that could be done from this set of ‘card words’.

Once the sentence is created, the child can copy it – and use it as the answer. 

The word-pool can be altered, based on the topic. It can be increased or decreased, based on the child’s needs:  the more difficulties, the fewer words to pick from.  It is a tedious process, but it does work – or, at least, it worked in several instances when I have used it (not just with my own kids). 

My personal opinion is that it teaches several things: 

  • By limiting the pool of words, it makes ‘finding the right word’ easier – by making it OK to settle for the ‘best available word’.
  • By forcing the use of ‘different types’ (as signified by colours/piles of words, based on role played in the sentence) of words, the Aspie reinforces the proper use of grammar
  • This exercise builds one’s confidence in their ability to form sentences – which is much more important than most educators acknowledge.
  • Perhaps most importantly, it creates the habit to ‘write what you can, not what you want to’

It is not perfect, but this might help overcome the obsessive need to only write an ‘impossibly perfect’ sentence…

Learning to write is not easy for people with Asperger syndrome.  There are many obstacles in  their way:  from mechanical difficulties, to ‘holding onto their thought long enough to write it down’.  Add the desire for perfectioninsm in written expression…. 

Following the suggestions of professionals who know the child is the best way to help him or her learn to overcome the difficulties which are part and parcel of Aspergers.  Yet, if nothing seems to work, frustration levels are building, the child is unhappy… I know there were times when I would have tried just about anything!  And letting the child help sort the words just might take an edge off the frustration.