Aspergers and memory – part 2: rote memory vs. reasoning

In yesterday’s post, I explained that while I have not been writing about Aspergers, I have been reading up on it.  While I am interested in this topic (being an Aspie myself – and living with other Aspies), I am not an expert in this field in any way whatsoever.  What I write are personal observations and should not be taken as anything other than that.

So, in Aspergers and memory – part 1: ‘sequencing’, I described that some ‘memory’ studies found that Aspies had difficulty recalling the order in which words were placed on a list they were given to read/memorize, which lead me to wonder if the frequent occurrence of dyslexia and ‘hearing dyslexia’ (APD) might be related to some memory or brain proccessing bit that messes up ‘sequencing’. 

Other studies I looked at would also have a list of words (10, 20, or more) to read/memorize in a short period of time, then the person would be presented with a whole page of words. The goal was to identify the words from the original list – Aspie results were compared to those of their ‘neurotypical’ peers.  The Aspies also did not do as well on this test as others did.  Yet, there was something that more than one researcher found quite intriguing:  for every ‘list’ word the Aspie missed, he or she was very likely to identify another word with similar meaning!  As in, they replaced some ‘list’ words with their synonyms…

Now, that opens a whole new way of looking at things!

I even read one very interesting study (only one, but I am looking for more) which concluded that Aspies of similar IQ as their peers were much, much worse at ‘rote memory’, but much, much better than their peers at remembering things they had reasoned out. 

This study found that ‘rote learning’ was absolute torture for Aspies, and they, frankly, sucked at it.  Not that they were incapable of it – they could improve it with practice.  Yet, it was not one of those things that came easily to Aspies.   Most Aspies had better recall of things which were ‘explained’ to them, rather than simply memorized.  They slightly outscored their peers, while other Aspies were just as dismal at this as they were at rote learning.  Where all Aspies excelled far above their peers was in remembering things they had reasoned out for themselves. 

Consider the implications of this:  some Aspies will be dismal in ‘rote learning’ or even ‘comprehensive learning’ (not proper term, I mean things they were taught through ‘comprehension’), but they are extremely good at remembering things they had figured out on their own!

And I must admit, this makes sooooo much sense to me!!!

The things I remember best from school are the ones where the teacher would introduce the topic, set up what he was going to use to explain it, and – before he would even say the first sentence – I would ‘see’ the pattern and understand exactly what he was about to explain.  As in, if I reasoned it out by myself – I still remember it without any ‘time degradation’, while if I understood the teacher’s explanation, the whole things gets ‘fuzzy’ with time and I have to strain to remember it, even if at one time I understood it and knew it perfectly.

Please, consider what is seen as one ‘typical’ Aspie trait:  they acquire ‘ecyclopedic’ knowledge about some obscure subject which they become absorbed in.  Could this be related?  Perhaps not ‘an explanation’, but could this be another manifestation of the same, or very related, phenomena?  After all, their ‘encyclopedic knowledge’ is to a large degree ‘self-taught’….

What are the implications of this?

First, I think it means we have to approach teaching Aspie kids very differently.  Take spelling, for example.  Instead of teaching Aspie kids simply the sound of the letters, what letters make up the word, and so on….what if we started teaching them from a broader linguistic background?  It is what I did with my kids – and it really worked…but I did it because to me, it seemed ‘the only’ way to approach it….  It would go something like this:

“See this word?  Well, look here – this is the Latin word for …”

“Hey, they have a bunch of similar letters in them!”

“Why do you think that is?”

“Ah, this bit of the meaning is the same!  They just took a Latin word bit and stuck it to …!”

Spelling that word would never be a problem in the future!  (There would still remain the often difficult task to actually motivate and Aspie kid to look at the words in the first place…but that is a whole different topic!)

Mind you, I took this approach to teaching grammar to my older son, too.  Our school system is operating on the ‘whole language’ method, where kids are expected to ‘absorb’ the language from their surroundings.  This simply is torture for Aspies, who like very specific rules they can apply – especially with English, where the linguistic ‘rules’ of a sentence are extremely well masked!

So, I turned to Latin – no we did not memorize the vocabulary, but the words in Latin are ‘flexed’ very specifically based on the role they play in a sentence.  It is therefore easy to see the patterns of how sentences are constructed.  Just showing the rules to my older son and letting him figure out for himself how to then build a sentence with latin words ‘flexed’ properly had an incredibly positive impact on his ability to write in English. 

Perhaps this is only one example, and perhaps this may not work with other Aspies, because there are soooo many individual differences between us.  Yet, I would be curious to know if others’ experiences and observations are similar to mine…so, please, let me know!

‘Cooperation’ is to ‘Collaboration’ like ‘Hippies’ are to ‘Yuppies’

Sometimes, things nag at me.

‘Buzzwords’ ‘bug’ me in general, the buzzword ‘collaboration’ bugs me in particular.

Being a slow thinker, I have wondered for years now why I even care.  And, yes, I do flinch every time I hear it used….’collaborative efforts’ sets up a whole tick of flinches!

But, why?

The obvious reason is the pejorative connotation ‘collaboration’ has in all the European countries once occupied by Nazi Germany.  Collaborators were those who sought to improve their individual circumstances by working alongside (co-labour-ating) the oppressive occupational forces through (and this is key in my mind) harming others.  Growing up, there was no ambiguity in morality:  ‘collaborators ought to be lined up along a wall and shot’. 

Of course, that is not the only meaning in which the term is used.  Is there something else about ‘collaboration’ that I am almost – but not quite – picking up on here? 

Perhaps a good starting place is to contrast ‘collaboration’ to its ‘predecessor buzzword’, ‘cooperation’.  The dictionary definition is – excepting the whole ‘lining collaborators up against the wall’ thingy – somewhat similar…yet slightly different.  Some dictionaries list them as synonyms, others define ‘collaboration’ as ‘directed cooperation’…  Many people more qualified in this than I have done excellent analysis of the difference in meaning from one discipline to another (some are mutually quite exclusive)…

What about cultural connotations, who uses the words, and to what end.  Could I find a clue there?  Perhaps…

The ‘old’ buzzword, ‘cooperation’, has a decidedly ‘Kumbaya’ feel about it…  It is all about caring and sharing and stoning anyone who isn’t already stoned into cooperating with, like, nature, and people, and, like, stuff. 

But it is also evocative of super-exclusivist intellectuals, like those who wear Birkenstock sandals (those non-conformists!) and set up ‘condominium co-operatives’ where they insist on interviewing potential condo buyers to make sure they are ‘suitable’ kinds of people to ‘cooperate with’.  They are open-minded, of course – ‘minority status’ is a bonus, so long as they have the right ideology and score high enough on the ‘pretentiousness scale’.

And it also makes one think of some more ‘proletarian’ forms of ‘cooperation’, usually called ‘co-ops’.  These would be ‘co-operatives’ set up to ‘help’ a specific class of people – say, farmers.  These tend to be incredibly inclusive:  as in (here in Canada), they successfully lobied governments to make it illegal for someone – like, say, a farmer – to farm UNLESS they were a member of the cooperative.  Papa Stalin would have been so proud!

From ‘Milk’ and ‘Egg’ and ‘Wheat’… these took on names like ‘Marketing Board’ and – strictly to protect the farmers and assure a ‘fair’ wage for their work – set out manipulating produce prices by setting quotas to limit production.  ‘Member’ farmers then have to buy a ‘quota’ and are forced to destroy any produce above this – or the ‘inspectors’ will destroy their means of production.  It is so strict that a chicken farmer is not allowed to bring a chicken she grew to her son’s barbecue… for removing the chicken from the premises and allowing ‘others’ to consume it with her, she could be stripped of her production quota. 

Now, THAT is SOME protection ‘cooperation’ can provide!

Marx had seen human cultures as forming a closed circle:  starting with a ‘primal collectivism’ in the earliest dawns of human civilization, through various stages like feudalism, capitalism and socialism, all the way to ‘advanced collectivism’ (I am translating these terms, never read this bit in English – sorry if it is not in ‘usual terms’…it is, however, in accurate terms.)  ‘Advanced collectivism’ is, of course, synonymous with ‘communism’.

So why does the word ‘collaboration’ make me cringe even more?

Perhaps because ‘cooperation’ is to ‘collaberation’ like ‘hippies’ are to ‘yuppies’!

It is ‘self-centred’, ‘task-oriented’, ‘mean, lean and cold’.  Still just as pretentious – especially among the ‘condo people’.  Which is where the whole ‘WWII collaboration’ meaning comes in.  No, don’t invoke the ‘Goodwin law’, not like that…  Just that whatever the evils of ‘coerced cooperation’ may be, there is at least a ‘lip service’ paid to ‘improving’ and ‘community building’.  It still hold the idea – as wrong as this is – that whatever the means, there will be a common good that will come out of this.

‘Collaboration’ shakes these illusions.  Yes, is also is ‘working together’ but not like a team – more like cogs in a machine!

It is strictly business!  No social benefits, no community building, no ‘common goals’.  We have a ‘task’ here, you do your bit, I’ll do mine. Don’t bother trying to build an infrastructure from which other ‘stuff’ could grow – we don’t have funding for that.  Just build your widget – I don’t care how or whom you hurt in the process – and hand it over to the next guy in line!

I suppose it is a sort of a ‘modern day production line’, except without the robots.

Like ‘cooperation’, ‘collaboration’ is less and less a matter of choice and more and more a matter of coersion.  It has all the negative aspects of ‘cooperation’ (except the campfire songs – no time for that), yet more dehumanizing…. 

Oh, yes, we are all pulling ‘together’, but not as a team… it’s each collaborator for him/her self!

Where ‘cooperation’ was (in its infancy) a reaction to a controlling society, an attempt to band together to stand up to ‘big business’, ‘collaboration’ is the ‘next evolutionary step’.  It is – in every sense of the word – ‘bureaucratization’ of ‘cooperation’.  Just think about it for a while – it really is.

Which brings me to the WHO: Who are the people most fond of this buzzword?

Bureaucrats of all stripes! 

Oh, they don’t see themselves as bureaucrats!  They are ‘educators’, ‘intellectuals’ and ‘professionals’!  Except that….they’re not.  They could have been – but instead of ‘teaching’ and ‘discovering’ and ‘achieving’, they are busy ‘defining the process’ and ‘implementing best practices’ (controlling the process) and going to important meetings to tell other important people about their latest ‘best practices’… bureaucratizing!

Collaborators, the whole bunch of them!

Aspergers and writing – sentences

Writing a sentence seems like a simple thing – just figure out who is doing what, and write it!  Right.  Except it is not that simple for an Aspie

This seems incomprehensible to many teachers, parents, and any ‘outside observers’.  How come an Aspie is fully capable of presenting a coherent, detailed explanation of something without any preparation, but when asked to write a sentence or two on that same topic, they are unable to produce one?  How come that when asked a question, an Aspie student can speak for 15 minutes, giving exhaustive, accurate answer, but will only put down a single word as a response to the same question on a written test?

It does not seem credible – to the teachers or parents – that this could be possible.  ‘Just write down what you said!’ tends to be the response/command/advice, but it just does not work like that.  I do not know how or why, but I have seen it and experienced it.  Needless to say, this only leads to very high levels of frustration among both sides…

Many professionals in this field are studying this, and doubtlessly, there are many excellent theories about why or how this occurs.  I do not attempt to address that here – I just hope to look at the mechanics of how this can be overcome… at least, a tiny little bit!

First, the way language is taught is terribly important.  It can mean the difference between practical illiteracy (at least, in the ‘output’ phase) on the one hand, and ‘functionality’ on the other.  How can this be so?

Aspies tend to like to follow rules.  Perhaps not everyone’s rules, perhaps they have a lot of difficulty decoding social rules, but – once a rule is understood and accepted, Aspies tend to derive comfort from adhering to them.  This is true for language.

It is unfortunate that the current ‘model’ for teaching English (as a first language) in much of North America is the ‘whole language’ approach:  this is the hairebrained idea that children will simply ‘absorb’ the rules of English when they are ‘exposed’ to them.  Perhaps this may work for a small minority of kids.  It certainly makes the teaching less laborious, because the teacher does not have to actually teach grammar, correct grammatical errors in written work (we are looking for substance, not grammar…).  And, much more often than I would have liked, I have come across teachers who are not even able to follow simple rules of grammar themselves!

This is a major problem for Aspies:  the rules are difficult to ‘absorb’ – especially when the teacher does not use proper grammar….  Constructing a proper sentence then becomes quite bewildering.  Yet, many Aspies can master written language quite well, so there must be something else going on here.

Perhaps there is a different part of the brain that controls verbal and written expression.  Or, perhaps many Aspies consider things that are ‘written’ to be ‘permanent’ – and therefore there is a much higher level of perfection that is required.  I have asked many adult Aspies who have tremendous difficulties writing things, and there seem to be striking similarities among most of them.

First, the idea.  That is the easy part.  In other words, the Aspie knows what he (the friends I questioned were all men) wants to write.  The problem comes in the how to write it:  they will put a word down, wonder if it is the most accurate one – and start ‘googling’ it. Wikipedia probably has some pretty good definitons of this – you should check it…. 

The problem with Wikipedia

OK, refocus.  Now you have the correct word.  So, how do you fit it into the sentence correctly?  Is that the right grammar?  Perhaps you should ‘google’ that….

 

OK, refocus.  You now have a noun and a verb, most likely in the proper grammatical structure.  But it is nowhere near sufficient to capture the meaning…  Perhaps it is time for lunch.

And so it goes.  Not very productive, but, eventually, some semblance of a sentence will be produced.

So, how can one help a child learn to overcome this?

My personal exerience gave me some insight.  I was lucky enough to be able to reproduce patterns – sound patterns and picture patterns.  This helped me get selected for a language school when I was 8 years old… and while I was struggling to write basic sentences in my native tonngue, miraculously, I did not experience the same problem in the new languages.

Perhaps advice from a teacher helped: 

‘Do not write what you want to say, write what you are able to say!’

With a limited vocabulary of less than 50 words, and only a rudimentary rules of how to construct a sentence according to the new language’s rules, the prospect of ‘writing a sentence’ became more managable!  With only a limited number of permutations possible, selecting the best possible combination of them which most effectively gets the point across became easy!

When my older son got to a point in his schooling where he was expected to construct more than just simple sentences, he started having a problem.  Trying to help him, I realized that he only had a very basic (and somewhat flawed) idea of how English grammar works….

Solution?

Basic textbook of Latin!

The reasons for selecting Latin were many:  from loan words down.  But the most important reason was that the Latin grammar was very explicitly spelled out – and that the endings of the words would change, depending on what role in the sentence that word played.  This is very key – it reinforces the rules of grammar, and helps figure out how to use them to construct a sentence.

My goal was not to teach my son Latin.  As a matter of fact, we spent no effort on memorizing vocabulary – we only focused on learning the rules for ‘flexing’ the words:  what does a particular ending mean – and what it tells us about the role this word plays in the sentence.  This skill was then easy to transpose into English sentence composition.

Yes – sentence composition.  Because that is how it has to be approached – this word is the subject.  This word describes the subject.  This word is the verb.  This word describes the verb….  and so on.

For younger kids, it might help to use tools:  on small, rectangular pieces of card paper, print a limited number of words related to the topic the child needs to write a sentence about.  Depending on the kid, start with 20-30.  Separate them according to their role in the sentence – it migh be very helpful to colour code them.  Nouns in one colour, verbs on another, pronouns, adverbs…so on.  Or, just separate them into piles. 

Then, when the child needs to write a sentence, let her/him pick out the right words and ‘build’ the sentence out of the ‘card words’.  Since only a very limited number of words are available, the child must be told the task is not to ‘answer the question’ – because that might seem impossible!  Explain to the child that the goal is to ‘build the best possible answer out of these words.  It will not be perfect – and it is not expected to be! Make it a game to try to create the best ‘best fit’ that could be done from this set of ‘card words’.

Once the sentence is created, the child can copy it – and use it as the answer. 

The word-pool can be altered, based on the topic. It can be increased or decreased, based on the child’s needs:  the more difficulties, the fewer words to pick from.  It is a tedious process, but it does work – or, at least, it worked in several instances when I have used it (not just with my own kids). 

My personal opinion is that it teaches several things: 

  • By limiting the pool of words, it makes ‘finding the right word’ easier – by making it OK to settle for the ‘best available word’.
  • By forcing the use of ‘different types’ (as signified by colours/piles of words, based on role played in the sentence) of words, the Aspie reinforces the proper use of grammar
  • This exercise builds one’s confidence in their ability to form sentences – which is much more important than most educators acknowledge.
  • Perhaps most importantly, it creates the habit to ‘write what you can, not what you want to’

It is not perfect, but this might help overcome the obsessive need to only write an ‘impossibly perfect’ sentence…

Learning to write is not easy for people with Asperger syndrome.  There are many obstacles in  their way:  from mechanical difficulties, to ‘holding onto their thought long enough to write it down’.  Add the desire for perfectioninsm in written expression…. 

Following the suggestions of professionals who know the child is the best way to help him or her learn to overcome the difficulties which are part and parcel of Aspergers.  Yet, if nothing seems to work, frustration levels are building, the child is unhappy… I know there were times when I would have tried just about anything!  And letting the child help sort the words just might take an edge off the frustration.

Animal-speak: squirrels

Believe it or not, I used to wear a hat like this!

nihilism - xkcd

I also am a bit of a nihilist.  And I love squirrels!!!

Yet another character shamelessly based on me…

Ego-aggrandizing jokes aside, I do love watching squirrels.  They are an easy animal to see in the city, and I love nature way too much to spoil it by stomping through it. So, urban wildlife is it for me.

Perhaps because I am not naturally good at reading people’s facial expressions and body language (as is common with Aspies), I have learned the habit of really paying attentinon these – or, at least, trying to.  But, only used it with Humans and pets, not really giving other critters too much credit.

I was quite young when I realized how mutually incompatible the ‘natural’ body language of cats and dogs is.  Yet, cats and dogs who lived together (especially if they did so from an early age) are quite capable of learning each other’s language.  Well, if cats and dogs could learn another species’ language, I should certainly be able to ‘learn’ this elusive body language of humans!!!

As I have argued before, kids with Aspergers who are having trouble discovering the ‘key’ to human communication can often decode the somewhat ‘simpler’ (or, perhaps, less complex) body/expression language of animals.  …sort of like learning to crawl before one attempts the marathon of nuances in human ‘non-verbal communication’.

Back to my main point!  As the trees matured in our neighbourhood, we began to see more and more squirrels who came to our bird feeders.  One winter, we were especially touched by ‘The Twins’.  Late in the summer, they started coming with their mom.  We suspect they must have been born later in the season, because they were very tiny.  And, before the first snow came, we stopped seeing the mom…

Yet, ‘The Twins’ stuck together.  They were very, very affectionate to each other, touching and reassuring each other often.  The smaller, bolder one would climb up the birdfeeder and throw food to the other Twin!  (  The Twins stuck together until late next summer, always together.)  Well, that winter, I started putting out food specifically for the squirrels….

Several years have passed, and one of the twins has returned here with three separate litters of her own!!!  Two of these litters were after she had become blind in her right eye, too.  Now I call her ‘One-eyed Jackie’, and she is the matriarch of the ‘Bruno’ (they are much browner than most our visitors) clan of squirrels. 

Besides the ‘Brunos’, we have two other ‘clans’ that come here.  One is called ‘Fuzzy-wuzzies’, because they have incredibly fuzzy fur, especially on their ears.  These are closely related to the ‘Brunos’, and they often mix.  The third ‘clan’ that comes here are called the ‘Zekes’ – and do not get along with the other two clans at all.  Curiously enough, they get their name from the Blue Jays that come here….

Yes, last summer, we had a family of Blue Jays come regularly, too.  And one of the adults was not at all shy!  If I was late putting our their breakfast, or if I the food I put out was not her favourite (I am guessing here that it was the female – we are more discriminating…), she would sit on a branch directly in front of the door, and in a loud, incredibly annoying voice, screech ‘Zeeeeeeke!!!’ – over and over, until she woke me up and I put out the approved food.

Believe it or not, the matriarch of the ‘Zekes’ learned to immitate that call!!!

Many times did I come out, looking for the Blue Jays that were not there, only to see her sitting on ‘the branch’.  It was not until I heard her actually make that call that I realized that it was she who was making it!  Obviously, I had underestimated the squirrel’s linguistic skills.  She has since also learned to perfectly immitate the neighbour’s little dog’s bark.  I began to pay more attention.  (It would probably have been faster to just read up on it, but I had fun watching them.) 

Soon, I identified that the clicking sounds they made were not random.  If I immitated the ‘clicks’, starting at the back of the mouth and moving forward, the squirrels took it as a ‘all safe’ sign, and would come down from the tree.  Even if the dog was nearby.  (It’s ok, he does not hunt them – he is a watchdog, so he just likes to watch!  When a squirrel once fell out of the tree and landed right in front of his nose, he started crouch-jumping up like he does when he is trying to get another dog to play with him.)

a dog who likes to watch squirrels

If I reversed the order of clicks, increasing the volume, the squirrels would panick and run!  Even if there were no danger anywhere about!  Then, seeing all was safe, they would flick their tails a lot and come back down.

Over that summer, I learned about 5 different ‘sets’ of clicks, each of which would be understood by ‘my’ squirrels.  Now I had a question:  did I really learn something of ‘their’ language, or have they learned to simply interpret my behaviour?  This was something I had to test, and an opportunity soon presented itself.

My son and I went to an event in a park about 5 km away from our house – far enough, I hoped, that I would not encounter ‘my guys’.  We were sitting in our lawnchairs, listening to some music, when a squirrel started hopping from one tree to another.  I saw my chance!

I started with my ‘all safe’ set of clicks – it was the first one I learned and I was most comfortable with it.  Plus, it is rather quiet – there were people about… 

The squirrel stopped in its tracks, as if frozen, and just listened.  Encouraged, I repeated the clicks, and added a second set (I think this one means ‘food is present’).  The poor little squirrel perked up its ears, and started looking about.  Actually, it looked a bit paranoid.  I kept up the soft sets of clicks. 

Suddenly, and with great incredulity, the squirrel realized that I was the source of this jibberish!

Well, this became one confused squirrel.  It resumed its original journey to the tree, but now, very, very slowly – and never taking its eyes off of me.  It kept turning its head, side to side, as if to confirm that it really was that human that was chatting with it.  I suppose I must have had an atrocious accent – and I fervently hope I did not say anything bad about its mother!

I guess you can predict how this story ends….  The squirrel was on a direct path to the tree, but was too shocked at the stuff coming out of my mouth to pay attention to where it was going….  Yes.  The squirrel hit the tree!

Hopped straight into it!

This was the only time ever that I saw a squirrel run into a tree.  So, I shut up.  Anyhow, I had to go and help my son up – he laughed so hard, he tipped over his lawnchair!

Aspergers and accurate words

School!  It can be a testing place at the best of times!

For people who need to use ‘precise’ and ‘accurate’ words to describe things as those of us with Aspergers do, it can be baffling.  After all, one becomes used to the vocabulary and expectations at home – but at school, the rules are different.  And people just do not communicate clearly.  In the words of the immortal Inigo Montoya, “I don’t think that word means what you think it means.”

Let me give you an example.

Schools are filled with many kind and caring people who truly have the best intentions towards our kids.  They are dedicated.  At times, they will even enter ‘uncomfortable’ situations, if they think the ultimate result will help one of ‘their’ kids.  I admire that.

One year, at the beginning of winter – just as it was time to start wearing hats and mits etc. – I got a phone call from one of my kids’ teachers.  Even though I am pretty thick at picking up on such clues, I could tell she was very uncomfortable.  She spoke in a little soft voice and picked her words very carefully.

The school, as it turns out, gets some free ‘stuff’ from the milk people, through the milk program.  Yes.  And it there are some families, which – at some times, and through no fault of their own – needed a little help, they could give these things as ‘prizes’ to their kids.  Since it is a ‘prize’, there is no stigma…

I was really beginning to wonder what this was about.  We were not in any financial difficulties – at least, I thought I would notice if we were.  So I made a non-commital sound, to show I was listening…

The teacher, kindly and gently, continued.  The promotional items they had included hats.  Since the weather was getting kind of cool, it was important that kids should wear hats.  And, today, during recess, my son had told her that he does not own a hat, and that he does not think we’re planning to buy him one.  So, if it would not cause offense, they could give him a hat from the milk programme…

Whatever reaction she was expecting, laughter was not it.  But, I just could not help myself!  I burst our laughing.  You see, my son was absolutely correct!!!  Yet, I owed the teacher an explanation…

The previous weekend, we had indeed gone shopping for a new winter hat.  My son became intrigued by these ‘hat and neckwarmer in one’ contraptions.  It looked just like a winter hat that was attached to the ‘neck’ part of a turtleneck.  It had a nice round opening for the whole face, but covered more skin than a ‘hat’ would.  That is what he chose to get instead of a regular hat.

And what did he wear the previous winter (to be used as a spare)?  A tuque!  If many people think that ‘tuque’ and ‘hat’ are the same, they should be corrected:  if they were the same, they would not have different names!!!

So, with puppy-dog eyes, solemnly and truthfully, my son told his teacher that he does not onw a hat!  And when she asked if we were just slow at getting ready for the winter, he truthfully said that we were not planning to get him one…instead of simply saying he forgot his new headwarmer.

The teacher was amused and greatly relieved! I suspect the story was used as a source of amusement at the teacher’s lounge. 

But this is a very real example of how people with Aspergers do not understand what they are being asked, unless the accurate word is used.  The terms used must be specific, precise and accurate, because Aspies do not ‘make leaps of faith’ or read things into stuff.  If we don’t know, we don’t know – we are not likely to jump to unsupportable conclusions.  The teacher would likely have received a different answer had she asked him if he owned something to wear on his head to keep it warm.

Another example of ‘crossed communications’ occurred when my other son was very, very young – certainly under 2 years old.  He absolutely loved watching ‘Bill Nye the Science Guy’, and absorbed much of his early vocabulary from that show.

One time, my mom was over, and was in the livingroom with my son.  When I came into the room, she was frustrated:  “I told him to stop picking his nose, but he just stares back at me as if I just fell off the moon!  What is wrong with him?!?!?”

I told her he just did not understand what she meant.  He already had a nose, so how could he pick another one?

Turnning to him, I said:  “Stop touching your mucuous membranes.”

He took his finger out of his nose, looked at me and said:  “Ah, spread germs!”  And went to wash his hands…

These may be funny incidents, but they do illustrate the difficulties Aspies have trying to understand people who use language sloppily.  Just imagine how impenetrable the meaning of many test questions is to them!!!  No wonder they often score very poorly on school tests – many questions do not really ask what they think they ask…

(This is ALWAYS the hardest part of writing a post:  how to end it!  I could go on talking about this endlessly…)

Aspies can, and do, learn to search the speech patterns of others for ‘similar concepts’ – this way, many Aspies learn to ‘decipher’ common speech.  And when we do, we are often so delighted, we drive others mad by playing with it!  Yet, this is not an easy skill to acquire, and it would not be realistic to expect young kids to ‘pick it up’.  This will lead to frustration – not just of the child, but also of educators, parents and others who interact with Aspie kids.

And, Aspie kids usually experience very high levels of frustration, even if they do not communicate this (or display the ‘typical’ signs of frustration, until it builds up into uncontrollable anger).  Making all these people aware of the need for accurate, precise and non-ambiguous use of language (and what that actually is – in the mind of an Aspie) would go a long way towards making life easier for everyone involved. 

If we could only teach the rest of the world to communicate accurately!

Aspergers and writing

Writing is one of the major woes for people with Aspergers

It is difficult to describe the depth of despair most Aspies suffer when trying to put pen to paper.  And it starts very, very early on.  There appear (to me) to be at least three different ‘subsystems’ in the brain that are conspiring to make writing next to impossible for young Aspies.

The first one to be encountered is the ‘mechanics of writing’.  Many Aspies have less ‘sidedness‘ differentiation, so their ‘writing hand’ is less ‘dominant’ – and thus has less fine motor control – than most peoples.  This is often encountered early on in childhood – as a result, the kids may not enjoy drawing, or they may draw with both hands.  Regardless of drawing, however, Aspie kids usually display severe difficulties when learning the mechanics of writing.  This is more pronounced in cursive writing, where forming letters needs to be combined with smoothly moving the hand along the page, so many Aspies end up printing instead.  

I suspect this is a motor issue, and could be overcome by ‘overdoing’ the practice.  This has, to a degree, been my case:  where I went to school, we started out learning cursive, and we were marked on our handwriting.  I totally sucked at it, for the longest time.  Then, I saw what handwritings the teachers marked as the best, and shamelessly immitated them.  And yes, I spent endless hours practicing, because I was going to be *%$#*^# if those air-headed girls with ‘pretty’ handwriting got better marks than I did.  The result?  I am told I have extremely beautiful, though almost completely illegible, handwrititng!

Another problem which Aspies encounter when writing is – and this is based on my observations, not an expert assertion – a problem with short term memory.  At least six different kids with Aspergers have described it as ‘the ideas going by so fast, by the time I’m done the first letter, I don’t know what word I am writing’.  Now, this is very interesting, but worthy of a post of its own (soon, I hope).

The third major problem I have observed is a little more complicated.  I do not know how frequent it is, but again, I have observed it in very many Aspie kids.  It has to do with language, its use and the very words that make it up.  Also, many Aspies perceive there to be a big difference between what is spoken and written.   Perhaps a little explanation is needed…

Asperger Syndrome is often described as ‘verbally expressive form of Autism‘.  Now,  it is important to make a distiction here:  just because Aspergers falls under the same spectrum of disorders as Autism does, or that the spectrum itself may have the word ‘Autism’ in it, does not mean that it is nearly as crippling as Autism can be.  Comparing Aspergers to Autism (as the Ontario Government recently did, in order to deny Autistic children proper treatment) is about as accurate as comparing a sinus infection to pneumonia – both are respiratory system infections, but they are not the same in severety or affect.  It would be an inappropriate comparison.

While Aspies are usually able to speak extensively on a topic, most have a difficult time writing on a topic.  This is very curious and puzzling to many parents and educators:  it can appear as defiance! So, what is it that makes it OK to say things, but not to write them down?  Perhaps an unusual form of perfectionism could be at play here.

It is my observation that Aspeis, especially children, consider anything that is written down to be much, much more serious, important and permanent than what is spoken.  Even when practicing forming letters, some of these kids will be extremely anxious about not being able to get the shape just perfect.  Not Aspies are this extreme, but I certainly was, and so was one of my sons.  He was so terrified to commit an imperfect letter onto paper, we ended up getting him to practice writing onto clear plastic sheets (of the type you can put through the printer, to use for overhead presentations) with easy-wipe-off markers.  And even thought he could wipe off any letter he did not like, before anyone else could see it (and at first, he wiped off all of them), it was still hard for him.

It is my suspicion that in a similar way, it is difficult for Aspies to write ideas down because they are not sure if their idea is good enough to be commited to paper.  And even if they get over that, and judge the idea worthy – and this is the key here – it is next to impossible to express their idea accurately, using everyday language.

I have often wondered – and would appreciate feedback from those who have observed this – if something similar could be at play with Autism…  Many (not tall) autistic children are said to begin learning language relatively normally, but then at some point, they revert and begin to use language less and less.  Could it be possible that as they learned language, words attained ‘colouring’ – secondary, or implied meanings – unrelated to their ‘object or action definition’…. and that these words became perceived as no longer accuratley describing its original meaning, and therefore discarded?  I don’t know, but I would be curious what others think about this.

It is often asserted that Aspies use language somewhat rigidly, or sound very pedantic.  Could it be that a similar perfectionism in expressing an idea, a similar subconscious frustration with the inaccuracy of language, is at play when Aspies try to put ideas onto paper?

I love debating, and do it online.  And, people have noted, that whenever I get into a serious debate, I spend most of my time defining the specific and narrow meanings of every word I intend to use (plus a few others, that I exressly will not use).  Many people find it redundant, annoying and boring.  Some think it is a ploy to manipulate the debate.  But I do not intend it as any of these:  before I can express what I mean, I need to ensure that there is no ambiguity in the language I use to express my point.  General language simply cannot do the job!

There is no simple answer to overcoming this.  

Each Aspie may require a completely different approach, what works for one may not work for another.  It will take years.  And it will always take much more time and effort for an Aspie to write something than it would take most people.  (It usually takes me 2-6 hours to write any single post – and some, I have spent 14+ hours composing.)

Yet, Aspies can learn to write.  And when they do, the documents they produce are usually very well researched and accurately expressed!

Aspergers and ‘hearing dyslexia’

This is another one of my very personal looks at living with Aspergers – both as an Aspie, and as a parent of Aspie kids.  While doctors and psychologists can tell us a lot about Asperger Syndrome, it seems to affect different people differently – even siblings can have incredibly different ways in which they are affected.  Not only does each person’s underlying personality determine the best (and worst) ways of handling it, there are often many physiological conditions which occur along with it and affect the skill-set available to be drawn upon.

One of the conditions that often occurs along with Aspergers and/or ADD is dyslexia – I know that when I was learning to read and write, I had a lot of trouble with it (and, to a very small degree, I still do).  What surprised me, however, was that just like people with dyslexia see letters either reversed, or in the wrong order, some people hear sounds ‘jumbled up’ in much the same way!  The technical term for this is Auditory Processing Disorder (APD), but I find it easier to think of it as ‘sound dyslexia’ or ‘hearing dyslexia’.  Apparently, this condition is not easy to test for, and many doctors do not even think of testing for it….yet it can have very major impact on the development of a child learning language for the very first time – whether neurotypical or Aspergers or Autistic.

Just like people with dyslexia can see letters reversed, or in the wrong order, people with APD can hear sound within words ‘reversed’, or lasting the wrong length of time so several sounds become superimposed over top of each other and very, very difficult to ‘separate out’ and understand….especially when one is just learning that different sequences of sounds can actually carry different meanings. 

Please, imagine that you have this – not correctible by a hearing aid, because the problem is not mechanical, but by the way sound is processed in the brain.  Because you cannot effectively (or reliably – the problem is notoriously intermittent) differentiate between words or phrases, it is very difficult to ‘catalogue’ or ‘make sense of’ sounds and their associated meanings.  Now add to it the Aspies’ inability to comprehend facial expressions, tone of voice or body language.  Frankly, I do not know how these young children can make any sense of the world about them at all!

How to overcome this?

One has to work within the child’s interests and strengths.  It is my hope that sharing what worked for our younger son may help you develop strategies which may work for yours.

When our younger son had problems learning to speak, it did not look to us like a problem.  Instead, it looked as a willful behaviour:  we were told he was refusing to use language in order to manipulate us, the parents.  It was a call for attention, we were told. 

But, that just did not ring true to me.  While we would read him every evening, and while he had our full focus and attention, he would still be unable to follow even the sipmlest stories.  He loved counting picture books with a number and that ‘count’ of objects.  That he could follow, and would lift the correct number of fingers – even try to say the numbers.  Sometimes, he even liked ‘word’ books – ones that showed a picture of an object and had the word for it written beneath the object.

But the moment we tried to read him even very simple stories, we lost him.  He would fidget, climb, jump, and generally do anything to demonstrate his complete lack of interest.  Thinking he wanted more of the attention focused on him (as we were told this was attention-getting behaviour), I would start telling him stories.  This way, there was no book and he was my sole focus.  Same reaction.

Eventually, he got interested – but on a very different level.  Accepting the ‘book routine’, he started picking out letters, one at a time.  The joy on his face as he would yell over top of my voice (as I was reading):  “A!!!  A!!!  A!!!”  I would confirm that yes, that was indeed ‘A’, and tell him how clever he was to have recognized it.

He’s settle down and look interested.  But he was not interested in the story.  No, because I would barely read another paragraph when he woud get excited again:  “D!!! D!!! D!!!”  Again, I would praise him, and try to resume reading.  But, it was not a ‘relaxing time’ that would get one ready for bedtime…

Eventually, I gave up reading him stories and broke out the ‘Alphabet books’.  I had thought he was too young for them, but if he loved reading the letters, I whas happy to oblige him.  For the first time, he was making ‘human’ sounds, one letter at a time!  And at this point, I saw that as a reason to celebrate.

We also added ‘bathtime’ to the fun.  He loved his letters, so I got soap crayons and we had great fun using the white ceramic tiles on the wall by the tub as our canvas!  I would let him pick a letter and then write every three-letter word which started with that letter.  As I would write them, I would read the letter, then the word!  And, surely enough, my son would read each letter with me.  B-A-T.  BA-. BAT.

Miracle of miracles:  he learned to speak!

Of course, he would NOT EVER repeat a word until he had learned what letters it was made up of, how it broke down to syllables, and how it fit together.  I suppose he was the only toddler I had ever encountered who had learned to READ before he learned to SPEAK!!!

Now, he has a little lisp when he speaks, but he has an above-average vocabulary.  

Another factor, which was happening at this time, and which I think was incredibly beneficial to our son as he tried to decode the mystery of communications, was his interaction with our dog.  Good natured and well trained, he was also very intelligent – and showed incredible patience with both the boys.  And while any pet will be beneficial, a well trained dog in the home can be very valuable in a situation like this. 

Why? 

Because the communication lines are so very clear.  Our dog was trained to obey a limited number very distinct-sounding commands, accompanied by hand signals.  In addition, the dog’s response to these commands was consistent and predictable.  His overall body language was also a much ‘simpler’ communication than the ‘human’ type.  To a young person who is having trouble understanding the underlying rules of communication, this can just be the key to unlock the mystery. 

We did not ‘get’ what was happening, and thought he was just ‘playing pretend’ when our son began to immitate the dog’s actions when we would give the dog a command.  And since the dog loved to ‘practice’ his commands for treats every day, I switched the ‘treat’ from a dog bicuit to an animal cracker….and let them both practice together. 

It may seem silly to people who are not ‘dog lovers’, but many kids love pretending to be ‘the dog’.  It is partly a game, and partly to see what reaction this would get.  And since I thought it was fun, and I was happy that he was interacting, I was delighted.  I would say ‘Sit!’ – and both boy and dog would sit!  I would give them a cracker each, they would happily eat them up, and look to me for the next command!  And he was happy – he finally understood some ‘stuff’!

Perhaps not every child would respond in this way, but then again, my guy is one of a kind!  Yet, I do hope that his story might help people understand that kids who ‘seem’ to be ‘manipulative’ or ‘acting out’ might not be doing that at all.  They may simply not understand what is going or around them, and be trying ‘weird’ ways to make sense of them.  And they may also be very frustrated….

But if you can find the key that will unlock the mystery, they will learn!  And they will be much, much happier – it is rewarding for everyone!  Even the dog…     ;o)

Pitfalls

The following is a painfully accurate description of one painful ‘creative’ process  people with Aspergers Syndrome undergo when ‘writing stuff up’:

You have found the perect topic – or perhaps it has been assigned to you.  Either way, you spend weeks figuring out the best angle from which to approach it, because that will determine what you need to read up on and how you organize your thought.  You read anything and everythig related to it, until you find just the most perfect way to present the main idea.

The brain engages, and does not let go!  Not for a little bit.  You even dream about it – if you can sleep at all!  You find yourself reading tons of stuff you realize you should have read long ago, because it added important data that needs to be included in the analysis of whatever it is you are thinking about – and you had already started thingking about it!

OK, re-organize the data in your brain and push the re-start button on the analysis process!  Oh, and all that stuff you wrote up yesterday – well, might as well re-read it before tossing it out….but wait!  This bit – let me ‘Google’ it, it needs to be expanded on so the reader does not become confused!  Oh, you’d better read that, too!

Then you realize that five or six years ago, you read a book or an article on an unrelated topic, but which could be used as an effective parallel – so you spend several hours hunting it down.  Better to also read a few of the underlying studies – to get a feel for the raw data, and thus better understand the reasoning underlying the analysis.  Right.  More data to add, re-start the analysis thinking bit again.

You think you have it:  and tell a friend about it.  It helps to bounce ideas back and forth – not just for the plausibility of your conclusions, but – and perhaps most importantly – to see if there are whole huge chunks of ‘stuff’ you did not explain, because it seemed ‘obvious’ or ‘common knowledge’ to you – yet which do not appear so to people who have not obsessively immersed in this topic for several weeks/months/years.  It is surprising to you how all these people could live happily without intimate knowledge of ‘whatever the topic topic happens to be’!

Your friend has no idea what you’re talking about – so you make a mental note to read up on ‘lay terms’ used to express ‘your stuff’.  More reading, learning how to dumb-down perfectly clear and precise phrases into common words which have layers of meanings, and so can never accurately describe anything exactly and unequivocally.  You’ll just have to compensate by expanding the section where you explain in detail how the words are used in your article.  It’s not a perfect solution, but it’s the best that can be hoped for.  Better add a paragraph or two to each sub-section, with more detailed explanations, or the whole point will have been lost.

Right.  Your deadline was a week ago – so even though you know you have a lot more to read up on to make an truly accurate analysis, you’d better get stuff down on paper.  Better include a paragraph or two to explain what you did not get to read up on, so people know and can compensate for it.  Sloppy…  But better than being misleading!

So, you write it up.  It is there, it took days of writing.  It is still terrible, even though you re-wrote each sentence four or five times, re-edited each paragraph to accomodate each sentence re-write, then adjusted the whole document to the changes in the paragraph. But, the basic ideas are there.  Good!

Almost ready.  Now, you just need to edit it down to under 2 pages….which is going to be a little hard.  You now have 78 of them, and that is in very small font in an effort to shrink it.  That will NEVER work!

Perhaps, you decide, you will pick a different topic…

Aspergers, schooling and frustration

Many people with Aspergers have been treated as ‘stupid’, or – and this is the ‘teachers’ favourite’ – “Your child is co clever, if only he/she would apply himself/herself, he/she could do so much better!”  As if the world were not frustrating enough without such patronizing haughtiness!   

There are very many ‘things’ going on – and many will display themselves as various ‘learning disabilities’:  dyslexia and/or its auditory equivalent, sequencing difficulties, social rejection + + + … and an ever growing frustration.  And yes, this frustration can be crippling – it can ‘freeze’ the mind which is capable of complex reasoning, yet treated as an idiot because one can’t seem to express it!  

In North America, school tests are all written – a ‘double jeopardy’ for Aspies.  First, understanding the scope of the question is a challenge in itself.  Is the answer supposed to be one word, one sentence – or a paragraph?  During written test or exams, one is not supposed to speak – and so cannot ask and find out how big the answer is supposed to be.  Then, it is incredibly difficult for Aspies to write their thoughts down in a consistent, comprehensive manner.  The mechanics of writing itself are hard enough, formulating answers and then remembering them long enough to write them down is something that will take most Aspies years to master.  This difficulty in written expression is kind of the ‘hallmark’ of Aspergers!

I know of a child who was slipping into a deep depression and getting bad marks in school.  After a series of tests, it was shown that he was able to express himself so badly (on tests), he scored in the lowest 25% in general cognitive tests for his age-group.  (That means that 75% children his age were able to write a better answer.)  Yet, in oral testing (and with guidance – letting him ask questions so he assured himself he understood the question and how detailed the answer was supposed to be – and with no time limit), he was found to score higher than 95% of his peers!  He was able to solve math problems from grade 8 exams, yet he was almost failing grade 2!

Can you imagine the amount of frustration this lead to?  That disparity between one’s actual ability, and one’s capability to demonstrate that ability to others can lead to very, very destructive self-image.  Frustration, shame, self-loathing….not really something that will help make things better.  And because it is more pronounced when they are young and have not learned to compensate, early on into their schooling, many Aspies figure out that even trying is pointless.

The key question, of course, is:  so how to fix it? 

The simple sounding answer is:  by exercising the brain.  The latest research on neuroplasticity suggests this can be done, with great results.  In the next few posts, I will try to describe the exercises that I have seen work – though not all people respond to the same way to all the exercises.  I guess that even despite being Aspies, we are all individuals!

And speaking of being individuals:  I just came across a neat article.  Perhaps forms of self-expression like these futuristic tattoos just might help people with Aspergers read the emotions of others!  Perhaps a little silly, but worth the read!

Fitna

The birthplace of Islam is in Arabia.  In Arabic, this word, Fitna , is said to be difficult to translate – but Wikipedia (not the end-all for learning, but an awesome place to start) explains is as “all-encompassing word referring to schism, secession, upheaval and anarchy at once”.  It also notes that ‘First Fitna‘ and ‘Second Fitna’ are terms used to describe the first and second ‘civil wars’ within Islam itself.

Even though many people are not aware of this, the most populous Muslim country is Indonesia.  In Indonesian, the term ‘Fitnah’ means ‘defamation, slander, libel’…

Is it not fitting, then, that Geert Wilders chose this word as the name for his very controversial documentary movie?  It may be his 15 minutes of fame (that is the duration of the movie), but it has certainly created a bit of an uproar.

Even prior to the movie’s release, individual Dutch people made little videos, to put onto YouTube, apologizing to the Muslim ummah (world family) and begging them to please not kill them because of it.  Really.  But, it would not be long and others would post ‘apologies‘ that are somewhat more imbued with deeper meanings…

But that is not all – Network Solutions, the company which was going to host the movie, even before the movie came out, pulled the site.  Sorry, decied to ‘investigate it’!  And all before the movie even came out!  And when the movie finally DID come out, it was quickly pulled, because of threats of violence against the employees of Liveleak.com, the company that hosted it.

So, WHAT is so horrible about Fitna, the movie?  Don’t let anybody tell you – see it for yourselves:  Part 1, Part 2.

And what is the POINT of it, anyway?

In my never-humble-opinion, the name of the movie says it all.  There is a war of ideas WITHIN Islam.  The Umma is being torn apart by very powerful forces.  And this movie, it is meant to be an exposition for the moderate Muslims, who wish to live in harmony with the rest of us, a wake up call to them:  these violent people, who themselves believe they are following the teachings of the Qur’an, they are the ones who bear false witness to your faith!!!  And you are the only ones who can set it right.

It is not, nor do I think it was ever meant to be, an indictment of all Muslims.  Not even a little bit.  Yet, it is meant to show how some Muslims are abusing their holy book, taking verses out of context (which they do in order to justify the violence), and how they are perverting their religion.  It is no coincidence that so many violent riots happened on Friday afternoons, after some men pretending to be religious men, and acting as Imams, used their perverted version of Islam to inflame hatred in their worshippers.

That is why, at the end of the movie, the filmmaker asks all ‘real’ Muslims to please reclaim their good and peaceful religion from these violent people who consider themselves to also be Muslims! 

Christians have had the same problem, and, to a great degree, they HAVE taken their religion away from the violent people who used it to make war and oppress people.  The filmmaker made this movie to show proper Muslims what is being done in the name of THEIR religion, and to ask THEM to do them same with Islam.

Or, do you think I am really off the mark?